My name is Gillian and I’m 33 years old. I was diagnosed with PCOS by internal scan when I was 21. Unfortunately, my PCOS story is not a happy one.
I had been suffering for years with irregular, painful periods, and weight gain prior to diagnosis. I spent a lot of my childhood and teens being berated about my weight by gps, and saw a raft of dieticians, and tried so many diets, and when I lost a bit of weight and then it stopped, I felt very despondent about myself, and the view from the medical professionals I saw seemed to be that I wasn’t trying.
Fast forward to my diagnosis, I had an internal scan, which identified the cysts on my ovaries. I was given an advice leaflet, I believe about things I could do to help the periods be more regular, and sent on my way. I thought, because they didn’t make it seem like a big thing, that it was purely cysts and periods, and just something I would have to live with.
Now, at 33, I have chronic pain, a degenerated disc in my spine, and I am obese. I’m using that terminology because it has been thrown at me by virtually every medical professional I have seen.
“You aren’t depressed, you just need to lose weight.”
“You aren’t anaemic, you just need to lose weight.”
“You wouldn’t have so many chest infections if you lost weight.”
“You won’t be able to lose the weight by yourself, have you considered bariatric surgery?”
One consultant I saw recently compared me to luggage. He told me he had run through an airport recently with a 15kg bag and he was knackered, and I was lot more than that so he couldn’t imagine how I felt.
I have only, in the last year or 2, discovered there is actually a whole lot more that PCOS actually means for me, and I am going to see an endocrinologist next month, but I feel so overwhelmed, and I don’t know if they will actually help me, or if it will be more of the same.