Polycystic ovary syndrome is diagnosed in one out of every ten women at reproductive age. The
condition is characterised by irregular periods, increased levels of androgen manifested as acne or
excessive hair growth, and multiple cysts that can appear in the ovaries on an ultrasound scan.
Many with PCOS experience difficulties in maintaining a healthy weight, having a successful
pregnancy and are at increased risk for type 2 diabetes, anxiety, and depression. In turn this can
compromise their quality of life.
Those with PCOS appear to get inadequate information about their condition and its management
which leads to confusion, feelings of guilt and lack of control. Research has shown that women with
PCOS wish to know more about the nature of the condition and the emotional and physical aspects
of this condition.
Currently, the available interventions including lifestyle management and medicines require
extensive input by a healthcare professional and have been conducted in secondary care. Therefore,
there is a need for a pragmatic and structured education programme which can be implemented in
the health system at a primary care and community level.
We are trying to conduct a survey among those with PCOS to understand service user’s
perspectives on the development of an educational programme for patient’s with PCOS. This will
help to develop a written curriculum for an evidence-based structured education programme for
patients.
If you would like to take part you can access the survive through the University of Hull surveys site.
Verity - The PCOS charity 