4.25 million in the UK live with #PCOS, and yet:

• we don’t know the cause
• there is no treatment for PCOS as a condition, but treatment for individual symptoms
• no licensed medication
• only one dedicated PCOS clinic in the whole country
• 70% remain undiagnosed
• patients rate the support for PCOS 2 out of 10
• people are still confused about ovarian cysts vs PCOS
• radically underfunded
• no NICE Guidelines
• no funding for laser hair removal
• no recognition and support for the impact on mental health
• it takes too long to be diagnosed
• we are still being told to go away and lose weight and come back when we want a baby
• told they should be grateful to have infrequent / no periods
• ⁠labelled a gynaecological condition
• ⁠inadequate time in the curriculum on PCOS, educating the next generation of healthcare professionals

and perhaps most importantly of all:

• ⁠zero proactive management and support to reduce the risks of co-morbidities and improve health outcomes and quality of life

What would you add to this list? Let’s hear it!

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