The below blog post has been written by the research team, and details of how to participate in the research can be found at the bottom of this post. Verity have sighted the ethics approval granted for the recruitment of this study. Please note that the condition previously known as PCOS is now referred to as PMOS; some researchers and clinicians may still use the term PCOS during this transition period.
Living with Polyendocrine Metabolic Ovarian Syndrome (PMOS) or Polycystic Ovary Syndrome (PCOS) can affect more than physical health. It can shape how people connect with others, experience relationships, and feel a sense of belonging. This study aims to explore these social experiences in the UK, including the factors that may make social connection easier or more challenging for those living with PMOS (or PCOS). We are looking for adults aged 18–45 who currently live in the UK and identify as living with PMOS (or PCOS) to share their experiences and insights.
About the Study
The study aims to explore how PMOS (or PCOS) may shape social experiences, including feelings of connection and loneliness. Participants will be asked questions about barriers to social engagement, such as stigma or healthcare experiences, and protective factors like supportive relationships or peer networks. The research is conducted by the University of Exeter and has received ethical approval. The findings will help inform strategies to support social wellbeing in people living with PMOS (or PCOS).
What’s Involved?
- An introductory session to read the information sheet, sign a consent form and eligibility form. We will also ask a few questions to check eligibility regarding PMOS/PCOS
- One semi-structured interview lasting approximately 45-60 minutes
- Conducted online via a secure video call or face-to-face if local in a university authorised room at the University of Exeter Streatham campus
- Audio recordings will be securely stored and anonymised
Who Can Take Part?
- Age 18-45 years old
- Currently residing in the UK
- Diagnosed as living with PMOS (or PCOS)
- Anyone who menstruates, regardless of gender identity
- Any ethnicity or race
Why Take Part?
Although participants may not receive direct personal benefit, reflecting on and sharing their experiences can provide validation and an opportunity to express feelings they may not have discussed elsewhere. The study will explore how Polyendocrine Metabolic Ovarian Syndrome (PMOS) or Polycystic Ovary Syndrome (PCOS) affects social experiences, relationships, and loneliness, identifying both barriers (e.g., stigma, symptom visibility, healthcare interactions) and assets (e.g., supportive relationships, peer communities) that shape social wellbeing. Findings will contribute to research, inform healthcare practice, and support the development of interventions and resources tailored to the social and relational needs of people living with PMOS (or PCOS).
How to Get Involved:
Please click this link which will lead to an Expression of Interest form on Qualtrics to confirm that you fit the criteria to participate and provide your contact details for us to contact you!
https://exe.qualtrics.com/jfe/form/SV_003oBdDqCA9IY62
About the Researchers
Victoria Nguyen and Pakhi MSc Psychology students at the University of Exeter, conducting this study as part of their dissertations. The research is supervised by Professor Manuela Barreto. The team is focused on exploring the social and relational impact of Polyendocrine Metabolic Ovarian Syndrome (PMOS) or Polycystic Ovary Syndrome (PCOS), including how it affects social experiences, relationships, and feelings of loneliness.
Thank you for your interest in this study!
Please feel free to share this opportunity with anyone who may be eligible and interested in contributing.
For any questions about the study or participation, please contact Victoria Nguyen at vn275@exeter.ac.uk or Pakhi at p208@exeter.ac.uk.
Alternatively, you may contact Professor Manuela Barreto at M.Barreto@exeter.ac.uk for further information.
The research team is happy to provide additional details about the study, the interview process, and available support resources for participants.
Participation may involve discussing personal experiences, which can sometimes cause emotional discomfort. If you experience distress or would like additional support, the following resources are available:
- GP or primary care services – contact your local doctor for support and advice.
- NHS Talking Therapies – for confidential mental health support: https://www.nhs.uk/service-search/mental-health
- Samaritans – confidential support, 24/7: 116 123 or https://www.samaritans.org
- PCOS UK / Verity Charity / PCOS Relief – condition-specific support and information: https://www.pcos.org.uk / https://www.verity-pcos.org.uk / https://www.pcosrelief.org/
Verity - The PCOS charity 